Let’s talk about Abortion

Actually ‘let’s talk about sex’ sounds much more exciting, and of course in order to get to the stage of abortion first sex needs to take place. That’s sex between two consenting, opposite sex, fertile couples. Although I wonder how may infertile couples who’ve used HART (Human Assisted reproductive Technologies) who discover they have a genetically defective, (or different) if your sensitivities are offended, go on to choose abortion to remedy the situation? I’m not sure, are statistics kept on that subject?

In the XXY world, which I am a leading thinker, some would say Antagonist and others would say Protagonist – and for those who can’t be bothered looking up the difference, they would say I’m ‘argumentative.’ For all those reasons I am known world wide. I am proud of it too. Being XXY is no choice, my opinions are my choice. Does being XXY influence my choices, I don’t really expect any more than any other set of autosomes I have, my carriers of genetic material make me infertile, they do not automatically infer sound choice making, any more than your chromosomes and autosomes do, if you think about it?

Of course being XXY gives me an excellent launch pad for mental retardation, if I were I could blame being XXY, if I were still born I could blame being XXY too. Now that’s getting a bit complicated, if I were still born I’d not be typing this….. oh well never mind, you get the gist. Being XXY let’s me blame anything associated with XXY as the cause of that trait, even if being XXY has nothing to do with that trait existing in me. Such as my Simian Crease for instance, both my current partner and her son have a Simian Crease, yet neither of them are XXY, but MY Simian Crease is definitely caused by me being XXY. Why? I have no idea! It just is that way, when you have a genetic disorder, difference, abnormality, aneuploidy, anomaly – whatever YOU want to call it, EVERYTHING that’s different about you is blamed on that genetic reality. All you have to do is chat to those XXY men who claim they’re intersex because they’re XXY to realise the futility of their argument – they cannot fathom that they feel intersex because of factors not associated with being XXY, in fact they insist they can’t. They also insist that as they can’t fathom it, then neither can you or I! Oh damn, shit, I can!!!

So when a woman…. oh to clarify, in New Zealand where I live, the qualification for abortion is To Be Pregnant! If you’re not pregnant you cannot have an abortion. And there is a cut off point where you can be too pregnant to qualify for an abortion. I have no idea what that point is, but there is one. So a woman chooses to have an abortion, she doesn’t get a genetic test done to see if the foetus is perfect or not. The fact that she doesn’t want the pregnancy is all that matters. So we don’t know how many women abort XXY foetusses unless there’s a history of genetic abnormality in the family, or the woman is 35 years of age or older, and she agrees to genetic testing.

Therefore the only statistics that can be reliably measured in New Zealand are of the women who choose abortion, who agree to genetic testing. That is buggerall women!

In America things are different. The Americans are very finicky about abortion. The KS&A (Klinefelter Syndrome and Associates) have separated the XXY mens discussion groups from the Parent discussion groups. Apparently some new parents of XXY foetusses, they would be mothers, are so distraught with the idea they have a defective foetus, that they can’t discuss being XXY with those who are XXY, they can only discuss it/us with non sufferers. Any of the affected individuals who want to discuss their options, including abortion, are prevented from doing do. Apparently when a woman gets pregnant in America that pregnancy causes her to lose all perspective. She becomes an emotional wreck. Cannot think straight. Pregnancy becomes a disability. Only well trained parents of existing XXY boys can possibly deal with their very sensitive fact of life, when imparting information to these newly diagnosed, and automatically disabled women.

I suppose because of sensitivities, I find it very difficult here to get Geneticists to talk about what options are offered pregnant women carrying an XXY foetus. I’m a big boy now I can hear the word Abortion and not get all judgmental about the womans choice. I can point out plenty of XXY freaks to these women and say “do you really want to risk another one of him?” And I can point out the clearly obviously intelligent among us XXY’s, myself included, who are nothing like those XXY nutters at all. Then I can leave it up to the woman to make up her own mind. But I do consider that the only reason pregnant women carrying an XXY foetus do arrive at support orgs for the XXY’s primarily, is to seek sympathy. What use is a parent of an XXY boy who’s constantly thinking of her own situation? Such a woman ought to abort if her brand of parenting is all she has to offer. Women who seek genetic counseling from trained professionals, who want to properly weigh the measures, and make a sound choice based on facts, they will make great parents, if they choose not to abort.

So am I pro abortion? Who cares, I’m never going to get pregnant!

Why are some people so Intransigent?

Way back in 1976 when it was first suggested to me that I had Klinefelter’s syndrome, and I looked it up in the public library, it didn’t quite seem true. “They must have made a mistake” I thought to myself. Men with Klinefelter’s syndrome are mentally retarded, and I’m not mentally retarded. “All these years and I never knew” I thought, “Mentally retarded people walk about with their tongues hanging out their mouths, I don’t do that!” It must be something else.

I did also see the infertility bit, but that just whizzed past my eyes, why wouldn’t it? If I’m not mentally retarded I can’t be that either. That seemed logical at the time. Then there was the extra chromosome thinggy bit, the karyotype, that was what the blood test was for one of them anyway. The others were to measure LH, FSH, testosterone, estradiol & other things, nothing all that important.

So for years and years and years after that I believed I had Klinefelter’s syndrome. Yeah it must be true, I’d been told it for years and never thought about it again, my doctors said I had Klinefelter’s syndrome and they all know what they’re talking about right, they’re doctors they never tell anything but the truth, right! Of course. It was just so simple to say – well once practiced it was easy to say anyway. Do you know we all say it wrong, it’s Kline’felter there’s a distinctive pause between the ‘e’ and the ‘f’ if we were to say it properly. But that’s an aside.

Anyway, then the 1990’s came along, and for some reason I was given cause to think about Klinefelter’s syndrome again. To that point it had only been a physiological condition that I was born with. Of course I was born with it, how else did I get it? No-one had ever suggested it was possible to get it without being born with it, so I must have been born with it, a ‘no brainer’ really, right?

August 1993 a publication came out called “UNDERSTANDING KLINEFELTER SYNDROME: a guide for XXY males and their families.” That was a shocker, I had to re-think. Oh well never mind, it was only the first ever time I’ve had to consider I was not born with Klinefelter’s syndrome. Bloody American’s they always want to come up with some different take of normal everyday things right, and here is another Americanisation. They can’t even spell aluminium, they don’t even know what aluminium is, but they use it every day! Of course I wasn’t prejudiced, New Zealanders are not prejudiced. I can read an American publication and read the right English into it, even if they can’t know it or spell it. Of course I can, I am smart.

Turn to page 5 everybody. “I never refer to newborn babies as having Klinefelter’s, because they don’t have a syndrome,” Arthur Robinson (bloody American) M.D.

Eh, eh, eh what? What’s this lunatic talking about? How the hell does he get away with that, bloody ignorant fool!

Turn to page 6. “Presumably, some of them will grow up to develop the syndrome Dr. Klinefelter described, but a lot of them won’t.”

So what did Dr. Klinefelter describe? This is going to take a lot of work on my part, I’m going to have to find a reliable source of information to find out what Dr. Klinefelter actually did describe, being that I just assumed he described me, when I was 17, before I was adult, legally or otherwise. I knew what was in public library books, but I’d never actually read what he described. I tell you first what he didn’t describe. He didn’t describe 17 year old teenagers. He didn’t describe babies. He didn’t describe children.

He described fully grown MEN.

These MEN had, obviously male genitalia.
These fully grown men were hypogonadal and had/were:
Small firm testes.
Gynaecomastia.
over 6 feet tall.
Elevated LH.
Elevated FSH.
Low testosterone.
Female fat distribution.
Female pattern pubic hair.
Sparse facial hair.
Sparse axillary hair.
Azoospermia.
Obesity.

Now then when was the last time you met a new born baby with:

Small firm testes.
Gynaecomastia.
Was over 6 feet tall.
Elevated LH.
Elevated FSH.
Low testosterone.
Female fat distribution.
Female pattern pubic hair.
Sparse facial hair.
Sparse axillary hair.
Azoospermia.
Obesity.

Or a prepubertal boy with:

Small firm testes.
Gynaecomastia.
Was over 6 feet tall.
Elevated LH.
Elevated FSH.
Low testosterone.
Female fat distribution.
Female pattern pubic hair.
Sparse facial hair.
Sparse axillary hair.
Azoospermia.
Obesity.

And what did I look like when I was 17, well a few of the above, these few:

Small firm testes.
Elevated LH.
Elevated FSH.
Low testosterone.
Sparse facial hair.
Sparse axillary hair.
Azoospermia.

I accept I did have Klinefelter’s syndrome when I was 17, but not all the symptoms, just enough of them. But NONE of them were manifest until after the onset of puberty. I was not born with Klinefelter’s syndrome.

That bloody American doctor knew more than I first thought!

I thought ‘FUCK what’s the point?’

It’s not like you have any idea what you’re talking about, or that you use what little grey matter you have between your ears for anything useful.

It’s not like I can gain anything by trying to teach you, and it’s not like you have the intelligence to understand a logical argument. Your entire existence is based on your refusal to learn, combined with a hatred of science.

You pride yourself in your ability to shut people up, and openly state you’ll do everything you can to remove people from places where you are, for them having the audacity to disagree with you.

You claim you want a free-flow of information and claim you want people to talk to you, but in reality you want neither, all you really want is to lord yourself over people and bully them into the submission of your depraved mind.

You’re an outright fucking arsehole!

You want to tell everybody that you’re a lesbian, then get upset when people point out that’s homosexuality, you’re admitting to be a homosexual. So long as you’re not sexually attracted to me I don’t care who you’re sexually attracted to. I care so little about thugs like you, but your narcissism won’t allow you to acknowledge you are truly hated! Not because of your sex of course, but because of who you really are, a bastard!

You’re the type of shit that give feces a bad name!

You, in your fucked up little mind, think you can abuse others, then grease up their arses as if you never did a thing to upset them. You’re so fucked in the head you can’t even allow yourself the knowledge that you’re a mean nasty heap of putrid fucking shit, you always were and you always will be!

So take your mindless, stupid, worthless self, and equally mindless, stupid, worthless ideas and ram them up your own arse, I’m sure they’ll all find a welcoming home.

You appear to be in a hospital bed. Have the authorities where you exist finally had you committed for the good of society?

Klinefelter’s Syndrome is a Chronic Disease

My latest testosterone injection, that, if you’re treated for Klinefelter’s syndrome you REALLY NEED to watch. And if you’re not treated for Klinefelter’s syndrome watch it anyway, you might learn something! Or if you do have Klinefelter’s syndrome and refuse testosterone therapy, watch it and get and indication of what diseases you’re likely to develop.

Klinefelter’s syndrome is a chronic disease, as with other chronic diseases it requires life long medical care.

I take Depot-Testosterone 100mgs/mL @ 125mgs per injection, supposedly once weekly, but in colder weather I might only have an injection every 2 or 3 weeks, depending on how I feel.

If an man with Klinefelter’s syndrome does not have testosterone therapy he has an increased risk of cardiovascular disease, auto immune diseases, and fatal fractures. By taking testosterone therapy he increases his risk of cardiovascular disease, and prostate cancer, but eliminates all risk of fatal fractures and developing auto immune diseases, although non Huntington’s lymphoma is not changed if he has hormone therapy or not.

Overall a man who develops Klinefelter’s syndrome is better off taking testosterone therapy.

Of the people who appear sane, who are XXY and claim to have Klinefelter’s syndrome, they ALWAYS make their claims from a position of anonymity, claiming negative writings about the disorder as reason for their shyness. However, I say

“If you’re going to advise people to not have hormone therapy, put your real name on your posts and make yourself publicly known.”

17 May 2011

No that’s not today’s date, it’s the date Dan Sheridan first wrote of him being XXY and not treated for Klinefelter’s syndrome. I can give that a bash, although it was a long time ago I was in the same situation.

I was 16, it was late 1975, December, something like that, I’d just recently left school, well I call it recently, within a year. I did a second year in the 5th Form…. a long time ago. I regularly went back to Wainuiomata College looking for something, don’t really know what. I hung round the Science labs a lot even though I’d left, the teachers never minded, I never caused any problems, helped them out from time to time too, cleaning up after their classes of students who just didn’t get it, Science wasn’t their ‘thing’ making a mess was!

I sort of got a job, sort of, a brief job cleaning high rises with one of my cousins, part time. His whole family described me as “death warmed up” sigh, if only they knew, if only I knew – another ‘that’d be nice.’ I got fired anyway, I could never remember what floor I’d cleaned, or if I’d cleaned the whole floor. High rise buildings have huge floors and you have to have a routine of how to remember where you’d been, and my short term memory was useless, very much the same today – without the medication that is. Ahh damn.

After Christmas 1976 I got a job at General Motors, Trentham, near Upper Hutt. It was a bloody long way from my parents house in Normandale, Lower Hutt – but it was a job and I needed a job I was told by everybody. I remember being taken on a day trip to some place south of London, it was a huge Ford Motor Company plant, they even made their own steel for the cars they built. I thought I might like to work in the car industry for a while. That looked pretty exciting. Trentham wasn’t that exciting, not as exciting as Dagnum, is that the right spelling? That’s how to say it anyway.

The Cleaning industry was not for me, I was headed for Motor Vehicle Manufacture, I’ll be the boss, when I figure out what I’m doing!

But then every day was just a bloody effort, an effort to get out of bed, an effort to have breakfast, an effort to meander down to the railway station to barely catch the right train, and often missed it! They did not like their workers being late, you can be fired for being late! Just a little bit late often enough and you’re gone! Not like school at all, being late for school is an art form, a desirable attribute! Being late for work is suicide. They trick you into thinking you need the money you never needed before you left school, then one day you do actually need money they pay you for building cars, it’s a good trick that!

General Motors did have a doctor, and they did require a medical examination, but the day I was there for my interview the doctor was sick, or something, not there anyway. I felt so relived I didn’t have to have a medical. When I was at Hendon Senior High School, (now just called plain old Hendon School), Golders Rise, Barnet, London, England, I had to have a medical there too, and afterward all the guys talked about having their balls squeezed. Even my very bestest friend talked of the same examination, so it must have been true, it just didn’t happen to me. That was not a saviour, it was a disaster. I could have been diagnosed then…. oh well, that’s my life.

And I was always in trouble of course at all the schools I went to except Wainuiomata College. Wasn’t there long enough to develop a reputation. Was there just long enough to pass a couple of exams and leave. Didn’t really want to go to school, didn’t really want to leave. Didn’t really think about what I was going to do with my life, I just went from day to day oblivious. Well maybe not even that, more like segmented moment to segmented moment, being that I was AD/HD Inattentive Type, but nobody knew that either. Gees so many obvious secrets, you’d think someone would notice something was odd, other than me of them, everybody else.

John Dawson, not a nice guy, he liked to flick with the ends of his fingers other guys balls, that was just so painful. He was my sisters boyfriend, surely he’d not do that to me, I must be safe, surely? Wishful thinking, oh gawd, why do I remember that? Atrophied testes still have nerve endings, take my word for it! They have the same number of nerve endings in a substantially smaller area than normal guys balls, normal guys or normal balls, take your pick. When you get your balls flicked and they’re atrophied you don’t get up for at least half an hour, and you feel sick for the rest of the day!

I was not looking forward to having my balls squeezed, not by anybody, not even me.

John Dawson decided I was too weak to have as a ‘girlfriends brother’ and he decided, from the goodness in his heart (I guess) to train me in Body Building. It was 1 lesson and that was it. I can’t say John Dawson was a particularly patient teacher. I was constantly wondering if I was going to get my balls flicked and trying my best to keep my back or side to him, and he was I think serious about getting me to lift a 50kg weight over my head. That might have worked, if I weighed more than 50kgs myself! I was 5’8″ tall, I had absolutely no muscles, anywhere, I was pale but then so was everybody else who was Caucasian, hairless almost completely, and I weighed 49kgs. I had been evaluated for Anorexia, but found not to be as I WAS concerned about my weight, and Anorexics don’t give a shit!

I also recall having lights shone in my eyes whilst being strapped to a chair and electrodes stuck to my scalp. No idea really what that was about, possibly something to do with the constant migraine headaches I got? I never bothered asking, I suppose I should have, maybe I did? I just can’t remember. I don’t really know what they were looking for but the testing stopped for some reason, and I don’t know what that was either. Maybe I have an account of that somewhere and I can go look for it, if I can be bothered? Apathy is not always a pre testosterone treatment event.

So I worked at General Motors Trentham until November 1976. Amazing I lasted so long. Tiredness was taking over. I was less and less late to get the train to work, but more and more stuck on the train all the way to Wellington after work. I’d just go to sleep, I hardly ever did overtime as I just didn’t have the energy. An 8 hour day working was all I could muster. And it was costing me a lot or money too. I only had a ticket from Trentham to Woburn, not Trentham to Wellington, and I’d have to pay the difference after they woke me up, at Wellington. Then I had to buy another ticket back to Lower Hutt. A minor bonus, Lower Hutt is a separate line, you can’t go from Woburn to Lower Hutt without first going to Wellington, and the bus up Normandale Hill left from Lower Hutt Railway Station. There was no bloody way I had the energy to walk up that hill! I really NEEDED a car.

Social life, what’s that? “If you’re too tired to work, you’re too tired to play!” I think my mum said that? Ahh but, she also said “He hardly ever went out before the diagnosis, and after it he never went out at all.” Socialising was not a priority, it still isn’t. I got much better things to do than socialise.

Did I miss anything out?

Back to something more Intersting

Klinefelter’s syndrome, those symptoms of disease I’m treated for, and have been OFFICIALLY since 1977.

I say OFFICIALLY as really I’ve only had effective treatment since 1993 ish? I can’t quite remember, I’ll have to check my website. It’s so good to have everything typed or written down, so much easier to not make mistakes.

Nah it was late 1993, what a long term memory, it actually works! The link goes to my page about testosterone therapy, and a letter by my Endocrinologist to my then G.P. discussing any problems I might have as a result of effective hormone therapy. Like many my then G.P. was concerned, without cause, about the side effects of testosterone. However it’s really hard to find a groundswell of public opinion, or dedicated followers of the idea to castrate all males, say after they’ve had a family, to counter this supposed negative effect of testosterone on the male body, or society!

The only people I know who are XXY who are really obnoxious are those who claim they don’t take testosterone therapy, or take a very low dose of testosterone. As the reports all indicate, XXY males who don’t have sufficient testosterone are really nasty people, until they do get proper help, that includes hormone therapy. In fact the reports I have all indicate no single therapy was said to be the ‘clincher’ but that they are all required for the holistic treatment of the individual concerned, you can read one report here that gives that distinct impression, if it doesn’t say it outright?

And of course I do know that to make my life public knowledge will cause some to the more emotionally challenged XXY’s to think they have something over me, but all they have is the truth, this is what happened, this is history, like it or lump it, I really don’t care.

So I finally got on to a therapy regime that matured me, something I recommend everybody who takes testosterone therapy. I see so many men who never shave over their entire face, develop no musculature, have no energy, don’t even have a job requiring physical activity. I however have worked in the Horticulture & Agriculture industries in New Zealand for much of my working life. I need to be able to work for at least as many hours per week as my counterparts. Having a sleep in the afternoon is not agreeable to making a profit.

And then going back to other XXY treated with testosterone who say they only have a minimal level, well it can’t be good for them. They’re certainly not involved in my kind of working activity. If a low level is good enough for them, that’s fine, the medical profession clearly had them in mind when deciding who got what as a ‘standard treatment.’ But of course no two men who have a natural level of testosterone have the same level, if every XY is different, why are all XXY’s the same! Well of course they’re not, no two people with the same karyotype are the same, not even identical twins!

Klinefelter’s syndrome is a dead easy to fix, all those other associated disorders to the additional X not nearly so easy.

I’ll write about that some other time.