A Message for Chloe Prince

See here:

FSH, LH, AMH, and inhibin B levels were normal in prepubertal patients and became abnormal from midpuberty.

That statistic refers to 100% of the patients in the report, of 98 individuals with Sex Chromosome Aneuploidy including at least 1 Y chromosome, aka males with Klinefelter’s syndrome, titled “Clinical Presentation of Klinefelter’s Syndrome: Differences According to Age.”

All the patients were sent to a pediatric or adult Endocrinologist because of various symptoms, including these:

Symptoms

The age distribution of all patients were:

Age

The karyotypes found in the 98 patients studied were:

Karyotype

All patients showed signs of Klinefelter’s syndrome from mid puberty and all patients were, and are, infertile.

Chloe Prince claims to have been diagnosed with Klinefelter’s syndrome as a result of Anaphylaxis a symptom not reported here. She also claim to be the genetic father of her two children.

I think Chloe Prince should make herself available for scientific evaluation, or at least her medical records available, so we all can gain a better understanding of how initial signs of Klinefelter’s syndrome can develop in an adult male, with gender dysphoria.

The Latest I can Find

For all those wallies out there, especially Australian and American wallies, who never look therefore never find, updated information, or statistical data about 47XXY/Klinefelter’s syndrome. So next time Hida Viloria wants to make an ass of herself, by repeating unverified crap from her uneducated colleagues, she can come here first and have a decent read of the latest I can find, that a lay person can easily read and understand, the exact reason why NZKA & NZSCS existed, Michael Noble:

Copyright © 2012 N´estor Pacenza et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Clinical Presentation of Klinefelter’s Syndrome: Differences According to Age

The aim of the study was to establish the characteristics of presentation of 94 patients with Kinelfelter’s syndrome (KS) referred to the endocrinologist at different ages. The diagnosis of KS was more frequent in the age group between 11 and 20 years (46.8%).

Most of the patients (83.7%) showed the classic 47,XXY karyotype and 7.1% showed a 47,XXY/46,XY mosaicism. Half of the patients younger than 18 years presented mild neurodevelopmental disorders. The most frequent clinical findings were cryptorchidism in prepubertal patients, and small testes, cryptorchidism, and gynecomastia in pubertal patients.

FSH, LH, AMH, and inhibin B levels were normal in prepubertal patients and became abnormal from midpuberty. Most adults were referred for small testes, infertility, and gynecomastia; 43.6% had sexual dysfunction. Testosterone levels were low in 45%.

Mean stature was above the 50th percentile, and 62.5% had BMI ≥ 25.0 kg/m2. In conclusion, the diagnosis of Klinefelter syndrome seems to be made earlier nowadays probably because pediatricians are more aware that boys and adolescents with neuro-developmental disorders and cryptorchidism are at increased risk.

The increasing use of prenatal diagnosis has also decreased the mean age at diagnosis and allowed to get insight into the evolution of previously undiagnosed cases, which probably represent the mildest forms. In adults average height and weight are slightly higher than those in the normal population. Bone mineral density is mildly affected, more at the spine than at the femoral neck level, in less than half of cases.

Just from a brief reading, skimming through it, I see that the patients with small penis overall was about 16%, contrasting favourably with the Ratcliffe report at 23%. The more patients found and studied the the lower the percentage of those with small penis are discovered. I expect even larger studies to report a similar trend.

It’s best guys that you don’t measure your penis size on the basis of published information. I notice one particular XXY idiot made a video about a site that said effectively we all had a small penis, Milton Diamond’s rubbish. Then reported a couple of years later that same information, as if it applied to him, and was relevant to all of us.

If you don’t understand anything, print this document out from the link provided in the copyright notice, take it your doctors and say these words “What does this mean?” I’ve used this process many times myself and it works a treat!

I can find plenty of information here to complain about, but don’t do that, sift out the good stuff. The first good stuff is, this report exists. Then there’s, you can copy it for free. Then you can repeat confidently – “Ongoing research continues into XXY / Klinefelter’s syndrome to improve our understanding.”

And all those above mentioned wallies can shut the f**k up!

Good day.

Not Uncommon

I just wrote a post to somewhere, to a group of people, but I think it’s worth posting here too:

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I think what most people fail to consider in their determinations on how things happen and why is the most basic start point. We all need to remember we are dealing with a life long disease.

How did you feel when you first found out?

Can you remember?

I can remember being different, always, in everything. The diagnosis for me was just another nail in the coffin.

Do you recall going to doctors saying ‘there’s something wrong, there’s something wrong, there’s something wrong, and hearing back ‘it’s nothing you’re ok, it’s nothing you’re ok, it’s nothing you’re ok?’

Maybe you can recall instances of when you should have been diagnosed and weren’t? Maybe that happened many times?

Do you remember the frustration of being told nothing sensible?

Do you remember being treated like an imbecile? This information is far too devastating, serious, complicated, for a mere patient to understand! You must be kept in the dark, you might even imagine the disease is much more serious than it is, if you’re told anything.

What does all this cause, all this stuff that goes on around your diagnosis?

What about when you remember those times, what emotions do you feel?

Have you known a close relative who has died, or a close friend? How did you feel when you discovered your loss? What is that called?

That’s called ‘GRIEF’ isn’t it, I’m sure it is. The grief of the loss is very powerful, your mood might even change, you might very sad, cry, maybe even be inconsolable for a time. And as time passes that grief fades and life continues.

But when you’re diagnosed with a life long disease, your grief remains. You remember all those difficult times associated with your diagnosis, and you feel it again, and again, and again. Regardless of how much you know, and I know, the grief remains.

If only it can be forgotten about, just do whatever you need to do and never consider it. That would be easy if it were possible to never need therapy. But by the end of the regime you’re on, you remember it all over again. And your mood might change, it might be so regular that you don’t even know why anymore, this is life the way you know it. My life is the only one I’ve had, other people must be the same as me, they must be re-experiencing that initial diagnosis and the emotions surrounding it, over and over again.

I can be going about my work and thought just pops into my mind of a long lost relative, and I feel the grief of that loss, just for a moment, then it passes. But this disease is a constant, and I remember the emotions associated with it regularly, and I feel the grief again. My mood might change, just for a moment, maybe a bit longer, and life goes on.

When I don’t have my therapy properly I experience another grief. It’s called tiredness. Yeah I get very tired when I don’t maintain my dose. When I was taking Panteston Capsules I mapped my dosage very carefully for a month, taking careful notes of when I took my medication. Over a month I’d miss a third of all doses. I was tired a lot, and I was very moody, and irritable, and tired. And all the guys I hung around with at work, they had much more energy than me, and I couldn’t keep up. They’d encourage me to go to gym, and weight lift, but it’s just too hard to explain, constantly why I’m not that get up and go-ish.

All these things add to grief, that elusive emotion that sweeps in like a mist as if there was no cause, but there is, and I need to recognise it. I think you do too.

Graeme,
XXY4LIFE

Australia 1988

A year is a long time, it’s 52 weeks, remember. I must have seen John before 1989 as I went to Australia in 1988, to live, forever. Forever isn’t very long at all. The maximum length of script for Panteston I could get was 6 months, so that’s what I got. I also got a letter of introduction for specialist care.

After I got my Redundancy in 1987, hardly worth the effort I put in to that company, I made Head Boards for Waterbeds. I had my own division I built from me to a staff of 6 I think? I suppose my employer noticed I was the right stuff to train. They were good to me, they were excellent employers. I was just pissed off I lost my job for reasons beyond my control. They relocated to Auckland and my last task was to train my replacement. My employer had 2 factories and they were shutting down their Wellington branch, so they had all the people they needed.

‘sigh.’

1988 was Australia’s Bi-Centenary year, celebrated in September I think? I was on the Gold Coast by then in a bar with my uncles, that’s why I went to Brisbane I had family there. If I’d gone to Sydney I might have survived longer, but it was all going to fall apart anyway. I was ‘gun shy’ by then of all doctors.

I had my letter of introduction from John, I had my 6 month supply of Panteston, but there was an unforeseen problem. My Endocrinologists letter was worthless, fuckit! I saw a Brisbane doctor for a new script at about 7 months. I was never any good at taking them all, on time, so I had a few leftovers after 6 months. The doctor I saw was nice enough, he didn’t examine me, thank god! This was working out just as I had planned it would. Well it was until I tried to get my prescription filled at the chemist. The pharmacist said “What is your authorisation number?” Authorisation number! What authorisation number!!!!!!!!!!!!

I paid that bloody GP good money for that script, and he KNEW, he must have known, it was worthless! I had to see an Australian Endocrinologist to get officially recognised as being entitled to receive my medication. Bugger. I went back to that bloody doctor and explained my problem and he just said “This is not a big concern, I’ll refer you to a local Endocrinologist.”

Yeah right!

I almost got there too. I rallied myself up to get there on time, to the right ward, I almost entered but I knew what was going to happen, and I’d had enough. I can do this without medication. That was my brilliant decision. When you’re hypogonadal you should not make decisions, they’re bound to be bloody dumb!

Australians are great people, if you go there to retire, with your New Zealand Pension, or for a holiday, but to live there you have to have a type of personality that wasn’t my type. I was ok whilst I had enough testosterone, but when I was buying ‘black market’ old stock from creepy characters, in back alley’s of the seedy side of Brisbane, Australians get real racist! They hate New Zealanders who work there. It’s a tangible hatred, you can feel it! I noticed it before my testosterone ran out, but after my irritability level just sky-rocketed! I was lucky I didn’t get arrested and deported! It wasn’t like I was abiding by the laws after all. I was buying steroids illegally! Of course there’s a lot of crap in the media about steroids, and the Australian media, they invent stories.

I ended up selling almost everything I had accumulated. I like to live comfortably, even now. I like ‘mod cons.’ I moved down to Sydney, the people there are much more cosmopolitan, I discovered. Even by other Australians Brisbane is described as a ‘big country town’ jam packed full of narrow minded racists! If you want to find a bigoted society go no further than Brisbane, you’ll love it! Just don’t be black, Aborigine, Kiwi, British, Japanese, Pacific Islander (any island) that’s to live there, visiting’s just fine, they’re more than happy to smile at you whilst they take your money!

I got job at an upholstery factory with all sorts of other immigrants. The employers in Brisbane were good to me too, they paid good money for my services. It’s the everyday people who can’t control their over zealous pride, that would be the best, most favourable, description of them. But in Sydney I was just one of millions of different speaking people. The Australians in Sydney are pretty hard to find, in the areas I lived and worked. New Zealanders sound different to Australians, and they notice it, we do too. They sound ignorant and uneducated to us!

Leaving Brisbane not that great an idea, really. I had my unreliable supply, but in Sydney I had nothing. Initially I lived in ‘Kings Cross’ at the time it was Sydney’s ‘red light district’ it may well still be today? They had a mono-rail passed over the top of it, or quite near it. It was like you could shop for a prostitute (or whatever else you wanted) from the comfort of an air conditioned, glass lined, cabin. That was pretty modern! The ‘room’ I lived in was initially shared with 1 other person, then more and more beds just arrived and by the time I left, and moved to Redfern, I think, there were 8 people living in there, including an American Vietnam Veteran. He was a damn pain in the arse, all he ever did was get drunk, throw up, sleep and piss himself!

If I wanted a room on my own I had to provide ‘services’ to the Manager, and plenty of people did, there was just some ‘work’ I won’t do! This is when I knew I had to get testosterone therapy back. The Manager wouldn’t have found me very helpful, I was completely impotent by then.

It was all my effort just to stay awake for an 8 hour day, and I could never do overtime, and there was plenty on offer. I could have done the same in that factory as I did in Petone, if I had the strength? It didn’t bother me doing the mind numbing slog, to advance. It’s all good stuff for an employer, they can see I’m keen, and they want to pay me more. Then they want more, and I want more, and it’s a snowballing upward effect, usually.

Occasionally I do that and it comes to grief, I’m just being used and getting nothing tangible in return, but that’s life! Males are renowned for taking risks, why would I be any different?

I ended up calling my parents collect, to send me a ticket back to New Zealand.

That was; humiliating.

Not taking Testosterone HARMS my sense of Wellbeing

This is a topic I canvassed with Dr Tony Marks, Psychiatrist, in 1989.

28 February 1989 sense of well being

By the time 1989 came along, life was no better. I had worked for the same company since 1983 to 1987 (mini share market crash) when I was made redundant and had not found steady employment for quite some time. I was under pressure to pay my mortgage, of course, and my co-owner was playing up. I’m on a very low and infrequent income. I can’t afford the alcohol & drugs we used to take every weekend, anymore.

For most of the 1980’s I didn’t see John at all. I’d put all this crap on the back burner thinking I was getting on with life, but really it was all just simmering away in the background, being drugged out of thought. I was a pot-head, and I experimented with any other drug I could get my hands on, I’d try anything, at least once! That’s when I discovered I had a propensity to grow plants, I was really very good at it, and it was a great way to supplement income.

According to my records I saw John in 1980, then not again until 1989. At about 1980 I switched to Panteston capsules, that’s testosterone undecanoate, the form that is undetectable in a standard blood test! One which I considered would be best as I’d not have to visit my doctor so often, would not be examined so often, and would not need to have so many blood tests. But there was a down side. There’s always a down side I’ve come to realise. The down side was I couldn’t remember to take the damn things often enough.

The more pills one has to take in a day the more chances exist that one will forget to take them, and that’s human nature too! My dad when he was alive was on medications all nicely packed up in plastic bubble wrap packs, and he often forgot to take them. I’m the same today too. I have medication for heart disease, and I forget to take them, I even forget to take methylphenidate! Methylphenidate’s supposed to be an addictive drug, gawd I wish it was for me, then I’d never forget to take it!

When I was in full employment, that was pretty good. I saw Colin Calcinai (plastic surgeon) in 1981 for my great set of new balls, and once I’d recovered life was looking up. Lots of people my age took drugs then, I fitted in with them just nicely. I was living up to the prediction of “Understanding Klinefelter’s syndrome: a guide for XXY males and their families” and since that booklet wasn’t published until 1993, it became pretty spooky when I read it. I wasn’t sliding into quiet depression, I was hanging out with a dangerous crowd!

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I was also the boss in the factory I worked at. I like being the boss. I was good at it. I started there making buttons, one at a time, 8 hours a day, 5 days a week! Boring wasn’t the word, how about mind numbing? Or tedious? Ahh but it was money, lots of money! I like money too. Prior to then I was trapping possums from the homes of wealthy middle class executives, who’d succumbed to their children’s wishes to feed the vermin in the bush round their luxurious homes. Those possums were fat, and the fatter a possum the more skin it takes to cover them, which means more fur, and more money! Even a ‘green’ possum was worth selling, that’s dead and unskinned.

Nobody believed me when I got around to mentioning I was treated for Klinefelter’s syndrome. No girl believed she was squeezing artificial balls. If they weren’t on birth control, I didn’t care, I didn’t need to care. I suppose the world wide AIDS epidemic was just starting to crank up then, it wasn’t a concern anyway. Yeah so sex was free and easy, apart from that down side. If I forgot to take my capsules I just didn’t feel in the mood. I was supposed to be taking 3 X 40mg capsules a day, one had the be at lunch time, and they all had to be taken with food. Testosterone undecanoate is transported round the body in fat, so I needed to eat and drink fat with each dose. That wasn’t a worry, I like eating fat, it’s great.

28 February 1989 sense of well being 2

The worry was remembering to do it. Remembering to eat. When you’re the boss in a factory you gotta work long hours, it’s not a ‘doddle’ and fitting in time for food is not always all that easy, and of course my mood would suffer. I would get so irritable. I could have ‘slogged’ any one of those other employees who I was supposed to be ‘leading.’ I’d go for days without taking any Panteston, then I’d dose up large hoping to reinvigorate myself, and I convinced myself I had. Really though it was all just psychological. I was reporting effects in 1989 that were impossible, there just wasn’t enough time for the medication to wear in or wear off that fast!

28 February 1989 sense of well being 1

The upshot of all that was to try the Testosterone Pellets, which were tried twice, and failed twice. My body just didn’t like them, they were exuded!

28 February 1989 implants

Real MAN Crap

For some reason with some XXY guys they have this weird Real MAN Crap to promote, such as they were supposedly told they can only be a real man if they took testosterone therapy? I believe that like I believe in the Tooth Fairy!

I’m a real skeptic. I need EVIDENCE of claims made, and I’m quite happy to provide evidence of claims I make. My Endocrinologist was most helpful in providing information, just not the right level of testosterone, I was treated to XY average, not enough.

I had lots of questions, more than that I did homework too. I volunteered I’d given myself a sperm test and found azoospermia. I didn’t know what I found was called ‘azoospermia’ but my description of what I did was acceptable to John as a reliable method, and he wrote of what I’d discovered in medical lingo.

22 August 1977 azoospermia

I have never met another XXY man diagnosed with Klinefelter’s syndrome who’s done his own homework. It seems like I’m the only person who was interested enough in the words “Klinefelter’s syndrome” and the genetic signature “XXY” to find out what it all meant before I saw my Endocrinologist? I knew it had something to do with sex, when you get your balls crushed by, well by that stage, at least 4 doctors, you KNOW the balls are the problem.

I am alone. I am unique. I don’t need to be bolstered up by anybody else, as my dad said “Graeme has always been a loner.” Wasn’t that so nice of him to notice. I thought he didn’t give a shit about me. It’s amazing how wrong I can be!

1977 - psych report loner

My partner says I should visit her place more, now why do I want to do that? I know I have what she wants and she’ll be by, sooner or later, for her ‘man fix!’ We had a great laugh this afternoon, after preliminaries, about all the nonsense on the internet, and in books, about me and our other friend, Tiny! Of course you know why he’s called ‘Tiny’ as he’s the tallest guy I’ve ever seen in my life, much taller than any XXY guy I’ve ever met. Tiny is XYY! All I have to do is make myself known and all these other types just gravitate towards me. I have learned, being sociable aint all it’s cracked up to be, I like being a loner.

That wasn’t true in 1977 though.

Klinefelter’s syndrome 1976 to 1977 Deadly Serious from Graeme-xxy on Vimeo.

Klinefelter’s syndrome IS the Symptoms of Disease!

Everybody who says they’re intersex is treated for a DISEASE (unless they’re lying) from Graeme-xxy on Vimeo.

What most of the people treated for Disorders of Sex Development are trying to hide from you, as they’re ashamed of their bodies. Some people who claim they’re intersex actually have Munchhausen syndrome, where they make up tall stories for their own aggrandizement, or they don’t want to admit they’re transsexual, or they just like the idea of having an unusual disease for sexual gratification.

All the current groups supporting supposed intersex people have Munchhausen syndrome people on their governing bodies, this is because none require proof of claims made. Some of the people with Munchhausen syndrome do have DSD’s too. They are grossly exaggerating their medical condition to elicit a more sympathetic response. Such as one man claims to have ovaries and testes, a condition never before seen in medical literature, he also claims to have Klinefelter’s syndrome. Such a case would be reported in medical literature as it has never happened before. In reality it has never happened at all.

His claim of having ovaries and testes is not the first instance, YouTube has another blatant fraudster who claims the same, and also claims CAH & 45X/46XY sex chromosome mosaicism. Such a person has the possibility of existing rated at 1 in 1 Trillion, more than the population of the earth, several times. The claim is an outright lie.

These people want to pretend the word intersex was replaced by Disorders of Sex Development, but I prove that is not true, Disorders of Sex Development replaces Disorders of Sex Differentiation, intersex isn’t even mentioned. None of these people were ever treated for an intersex condition, they were all treated for a Disorder of Sex Differentiation. The medical profession loves acronyms and will not even consider the change of nomenclature.

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Hida Viloria has got to be the dumbest educated person on earth! How can she possibly believe a disease like Seminiferous Tubule Dysgenesis can be anything but a DISEASE? She ought to reserve her stupid ignorant comments for the uneducated believers, and these fanatics really do sound like religious fanatics, who just couldn’t care less about the potential harm they can do.

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