War on the Syndrome

Syndrome isn’t a proper name, it should never have a capital letter to start it unless it’s an acronym, or a title, or as I’ve used it here at the start of a sentence. So all the reports that say “Klinefelter’s Syndrome” (symptoms of disease) in the body of the text are wrong, they should read “Klinefelter’s syndrome (symptoms of disease.)”

Who the hell wants to look like a fat ugly woman with male genitals? If that’s YOU and you take testosterone, you’re going about it all wrong. Don’t take testosterone and you’ll get nice and fat. Of course I have never met an obese person who has a good opinion of themselves. When they read or hear of how Klinefelter’s syndrome (symptoms of disease) develops they get all defensive. I don’t know why, they want to be fat, so why should they care how they get, or got fat?

I met a guy in Torrance, he was a lawyer, an XXY lawyer, can’t remember his name. He was one of the first XXY guys to successfully use ICSI. He decided to take me to task over my support of testosterone therapy for XXY teenagers. His father had died of prostate cancer, and he believed testosterone caused prostate cancer. Of course it’s not true, but people believe whatever they like, even lawyers. He had what I describe as ‘fat ugly’ body shape. If I had to have it I’d kill myself. I have no desire to look like that, like those ‘fat ugly’ women shapes with male genitals, I saw at Lower Hutt Public Library in 1975.

It’s a good idea not to have testosterone therapy whilst you’re building up to use ICSI, sperms need as much natural testosterone as they can get to, well, be there. Once they’ve been extracted through, there’s no logical reason to stay off testosterone, unless you want to get really fat. I can’t remember how the conversation went. I wasn’t expecting it anyway, it was an ambush. I expect I would have been conciliatory since I was in his country. I would have stood my ground I think. Making teenage boys look like an adult who wants to be ‘fat ugly’ is not fair. My experience is teenage XXY boys like masculinity, and ‘fat ugly,’ is not masculine.

Teenage XXY boys also like a sex life, being diagnosed as a teenage boy I can guarantee that. Low testosterone is no fucken good for a good sex life. Being a teenager and impotent is an esteem sapping killer. If prostate cancer was an absolute guarantee when taking exogenous testosterone, I’d still prefer a sex life with testosterone, to an asexual existence. Maybe a fat lawyer who’s got a family by ICSI can do away with his sex life, but I wouldn’t impose it on anybody. Sex is fun. Fat is ugly. A fat XXY guy with a sex life, unheard of! You MIGHT find a few, or plenty, of XXY guys who are obese and say they have a sex life, but they’re liars. Obesity kills sex life when it’s caused by low testosterone, the obesity that is.

Obesity’s part of the syndrome, no sex life isn’t, I enjoy a very active sex life. That’s a complication of obesity. Like diabetes, complication of obesity. Varicose veins, complication of obesity. Leg ulcers, complication of obesity. Amputations, complication of obesity. Of course just being male makes us susceptible to heart disease. Also being world famous worriers increases our risk of heart disease. If you happen to live in the fattest nation on the earth, that will also increase your risk of heart disease, as you’ll be living the culture of eating too much and exercising too little, if at all.

So I suppose it’ll make you feel better if you keep referring to your self as the ‘symptoms of disease’ then you can pretend there’s nothing you can do about it. You can believe you’re genetically predisposed to obesity. You can ignore all the other fat people around you who do not have Klinefelter’s syndrome (symptoms of disease), they’re obese because they eat too much, but you have a syndrome, you have a built in excuse!

Do you like my new page set up? I’ve changed the name of the blog too. I’ve decided to ignore completely any suggestion that there’s something different about our sex. You fellas who want to describe yourselves as the symptoms of disease, you won’t have a sex life anyway, so you can refer to your diseased bodies any way you like. I’ll refer to it as ‘fat ugly’ if I had it. I’m not interested in representing a tiny minority. The tiny minority can represent themselves, with lies. They have to tell lies or they can’t get away with it, being in the wrong population.

Medical researchers discovered in 1999 that men treated for Klinefelter’s syndrome (symptoms of disease) are notorious liars. They don’t propose an answer as to why, just that self reporting questionnaire is the wrong way to go about studying these guys. Self reporting questionnaire can still be used, so long as it’s in conjunction with a psychiatric evaluation and/or psychological profile too. I have been lied to so many times by men treated for Klinefelter’s syndrome (symptoms of disease). Some of the lies aren’t told directly to me, but they’re in print and available on the net. Plenty of people read them every day I expect.

The most notorious lie I can recall was repeated by Hida Viloria on video, that if a man treated for Klinefelter’s syndrome (symptoms of disease) stopped taking his testosterone therapy he could die! I will be bold enough to propose a reason for this particular lie. The man doesn’t believe he’s severely affected enough by his symptoms of disease, so to garner sympathy he exaggerates it. I believe he’s the same fellow who maintained that in 2002 doctors were experimenting on XXY teenage boys with testosterone. That support groups for XXY teenagers were recommending physical activity to alleviate gynaecomastia. Oh and that he was Gay but sought fertility evaluation because of his height. Yeah right!

So I don’t believe him. He’s making up stories. I’ve been treated with testosterone since 1977, and my rate was only altered if I complained about whatever. The first change was after 1 month when I said I noticed nothing from having a 100mgs injection. It was increased to 250mgs over 4 weeks, and stayed that way for years, because I never complained further. So I really can’t see doctors ‘experimenting’ with testosterone in 2002, when they only changed rates when patients complained, in accordance with the Endocrine Society guidelines.

An Endocrinologist treating outside the guidelines would only do so with good reason, like the patient was complaining. Experimenting is a professional ‘no no.’ Magical Thinking is also associated with XXY, I can’t imagine how it can possibly be associated with low testosterone, since men who develop low testosterone later in life don’t suddenly start making up stories.

The next time I complained it was to try to prevent physical examinations, as I got so sick and tired of them. Does anybody else find that when they’re known, they have their balls crushed on a regular basis? Oh I mustn’t be too exaggerating, having their balls palpated on a regular basis? Of course every single time I had my balls palpated, before the palpation, I instantly went stiff, as I had plenty of testosterone and just taking my pants off caused an erection. I don’t know why the doctors didn’t figure out they were hurting me, as soon as they started the ‘examination’ I lost my erection, as sure sign I’m in agony!

So yeah, I got tired of all that and I talked to John about switching to the capsules so I didn’t need to go to the doctors surgery so often. I just said it was inconvenient to have to go so often, once a month for my injection, that the doctors insisted on giving me themselves. I just think they liked playing with my balls, personally. Known about XXY guys rarely arrived in their surgery. Of course if they checked every guy for tiny testicles, they’d find plenty of guys with tiny testicles. Like AD/HD, when doctors look for it, they find it.

Reminds me of a joke that, “Kid dressed in a cowboy suit goes into a shop and asks for an ice cream with nuts, and the server lady says ‘do you want your nuts crushed?’ and the kids says ‘do you want your tits blown off?’ pointing his toy gun at her.

Anyway, my whole plan blew to bits. The doctor I was seeing would only give me 1 month supply of capsules at a time, and insisted on seeing me for an appointment, and examination, every time I went for a new script. So nothing changed. Every time I changed doctor, or had to see a different doctor as the regular one wasn’t there, I had my balls squeezed. Doctors just loved my testicles. They loved them so much more than I did, I hated them.

When I was teenager, young adult, even up to middle aged, and looked much younger than I actually was, treated for Klinefelter’s syndrome (symptoms of disease) this is the sort of shit I had to put up with. I have considered that part of this is John’s fault, he should never have written in my medical record, “good scrotal and penile development.” I was a novelty, I still am a novelty. XXY guys are supposed to have a short penis, and I do not have a short penis. It’s dead easy to prove too, just in case you don’t believe me? I don’t see XXY guys naked very much these days, but when I did I didn’t see any with a penis so short it was noticeably short.

Late consideration 04/06/2013 : Many of the XXY men complaining about a short penis are also circumcised. It may well be that when that barbaric butchery is done away with, XXY men from America will cease reporting a short penis? It’s not their fault they’ve had their pride and joy shortened by a complete lunatic.

New tactic, I’m at war with the symptoms of disease.

Sterile

I met a psychiatrist once who said he couldn’t understand why I was so bothered about being sterile. I suppose, as I never asked, his idea was it’d be great, screwing around everywhere, anywhere, never having to worry about pregnancy. My experience was that teenage boys don’t give a shit about pregnancy anyway. Teenage girls didn’t either. As always the hard part was finding someone to have sex with, not whether condoms could be acquired. An erect penis and a willing partner, that’s it, all the necessities are satisfied.

psychiatrist_assume_i_am_never_wrong_

What do you do, you’re 17, you’re told you’re sterile, you read you’re sterile. Do you all just accept what you’re told, all the time? I was more inquisitive than that. I didn’t request a sperm count, I decided to give myself a sperm count. I can prove it too! The microscopes I was intending to use I knew were not powerful enough to see individual sperms, they were powerful enough to see movement. Like when they’re using the Hubble space telescope to study a blob, to see if a far off object is a star, or if it has a planet orbiting it. They don’t try to zoom in on the planet, they just check to see how much of a wobble it has. If it wobbles there something with greater mass exerting gravitation force on it. That’s the same principle, if my ejaculate wobbles there’s something living in there, and if it doesn’t, there isn’t!

high sperm countHigh sperm count

I suppose there could have been 1 sperm, but since my balls were less that 1.0mL in volume there wasn’t really much chance of that 1 being there at all. It was just an academic study to keep my mind occupied, since I was unemployed anyway. I had to work out how to get to the microscope I planned to use, ejaculate and use it, without anybody working out what I was doing. That might be kind of difficult to explain?

So I decided to ejaculate before I set out. Masturbating in a science lab at a high school might not be received so well, if I were caught. And people say guys with AD/HD don’t plan! I never had a problem producing ejaculate, getting an erection was a worry, but then I learned an erection is not required to ejaculate. Believe me it’s true, you’ll just have to work it out for yourself, I’m not explaining it. 🙂

low_sperm_countLow sperm count

I found one of my mothers lip-sticks, removed its contents and it was perfect. Easily concealable. Ejaculate becomes like water soon after it is, well, ejaculated, so the container has to be water tight. I was a regular visitor at Wainuiomata College as Blossom was associated with that school, and Jack her husband, and she was the person who convinced me to waste 6 months there doing New Zealand secondary school examinations, so they knew me. Getting in was easy, I just volunteered to help clean up the lab after the class before lunch. That gave me 1 hour of free undisturbed scientific investigation.

Have I mentioned I have an O Level in Human Biology? I think I may have. I’m proud of that qualification. “O” means Ordinary by the way. I have an Ordinary Level qualification. I also have a New Zealand “School Certificate” qualification in Human Biology. I like Human Biology. I know how to use a microscope. How to prepare slides, how to place them, how to clean up afterwards. So; there was no movement. Slide after slide there was no movement. And the last slide was ruined as my tears dripped on to it as I was about to place the top slide on.

stressBeing inquisitive has a down side.

azoospermiaWhat I found, Azoospermia – no sperm

I can’t understand why anybody can’t understand why a teenage boy is upset because he’s sterile. It is a big deal.